Just diagnosed with narcolepsy

Hey guys! Just joined this subreddit. I went and got a bunch of testing done with a neurologist out here in las colinas. They did all sorts of tests including a night time and day time sleep study. They found that I’ve had pretty bad narcolepsy. I always thought I was just a tired person my entire life. Anyways I was prescribed Provigil 200 mg 30 doses a month. It’s about $1400 a refill, but GoodRX brought it down to $30 a month at Costco which was very clutch. Do you guys/gals have any tips about this stuff? I start my new job on Monday and I’m working from 7:30-4:30 everyday. Doctor didn’t really give me any instructions besides once a day. What time should I take it? Like 5 AM? Should i break it up in half and split it up? Can I take any sleeping meds at night if it doesn’t wear off in time? Thanks! Read More

2 thoughts on “Just diagnosed with narcolepsy

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  • I have narcolepsy, too. My neurologist told me to take it when I wake up.

    I take mine between 6:30am and 9am every day, depending on when I get up. I usually take it around 7:30am.

    I take a second 200mg pill, too, which he told me to take before 12pm. I tend to take it between 10:30am and 11:30am. If I forget, I will take it all the way up to 1pm.

    For me, it works best when I take my first before 7:30am and my second by 10:30.

    If you’re taking it at 5am, I can’t imagine it will keep you up at night.

    Maybe head over to r/narcolepsy and ask for tips, too.

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